What Do You Do When Your Daughter Is in the ICU and Almost Dies?

“You’d better get over here right now. Things are very bad, and she might not make it.” I was sitting at my desk at work when my mother-in-law called from the hospital with this terrifying message. This was the scariest moment in my entire life.

Here’s the backstory.

Our sixteen-year-old daughter Stephanie was in the ICU at Children’s Healthcare of Atlanta (CHOA) with a terrible condition called Stevens Johnson Syndrome (SJS). In a nutshell, SJS is a rare, extreme allergic reaction to medication where the body literally burns from the inside out. The mortality rate is about 30%, and many of those who don’t die often experience permanent damage to their soft tissue including their eyes, mouths and lungs. Many lose their sight entirely. And Stephanie had a severe case with second degree burns on 75% of her body

She had recently started a prescribed sulfa antibiotic, and after a few weeks developed flu-like symptoms, strange sores around her mouth, other serious skin eruptions, and a life-threatening fever that reached 105.7 degrees. Our local ER transferred her to CHOA where she spent 20 days in the pediatric ICU, most of the time intubated and in a drug-induced coma. During her hospitalization, she nearly died three times.

Thankfully, the medical experts were able to identify and correct the problem that prompted my mother-in-law’s horrifying call, and Stephanie survived. She eventually recovered, albeit with eye damage and other significant, lasting problems. By God’s grace, she is doing reasonably well physically, and she and her husband recently welcomed their first child into the world. (I assure you, that boy will NEVER take a sulfa medication.)

Throughout this crisis, God made his presence known in a supernatural way. One question that many asked was how we could appear to be so calm in the midst of a parent’s worst nightmare.  All we could say was that somehow God sustained us emotionally.

I distinctly remember him telling me, “It will be alright.” He did NOT say, “SHE will be alright.” The message was, “IT will be alright.” We had no assurance that Stephanie would survive or that she would not have brain damage or go blind – real possibilities. But we DID have an uncanny sense of God’s presence.

Some wondered how we could trust God in this situation. I clearly recall thinking, “Why would I turn my back on God?” I could either scream at and curse him or run to him and cling to him in unprecedented ways. By God’s grace, despite all the emotional turmoil, neither my wife Annette nor I were ever seriously tempted to turn our backs on God.

I had always heard that God provides grace at precisely the moment we need it but not necessarily in advance. Corie Ten Boom, a saintly Dutch woman from a previous generation, once wrote that when she was a child traveling by train with her family, her father would only hand over her ticket to her at the last minute, just as she was about to board the train. This helped her see God provides – not necessarily by fixing our circumstances, but by assuring us of his presence – when we need it, and seldom before.

There is no guarantee that we will always be spared from tragic circumstances, but God does promise to be with us through even the worst of times:  “I will never leave you nor forsake you (Hebrews 13:5).”

I pray you never experience a similarly traumatic episode, but if you do I urge you to tap into the grace God offers in such pivotal times of trial. Annette and I can testify that it is real.

 

Part 2 - “What’s Your Definition of Legalism?"

Last time, I identified three aspects of legalism as any practice or activity that:

  1. God has used in my life which I then expect other believers to follow

  2. I feel compelled to do to enhance my relationship with God and which, if I don’t do, will jeopardize my standing with him

  3. Fans my spiritual pride or causes me to look down upon those who are less “spiritual’

And I promised to amplify these thoughts this time with comments on how misunderstanding context and culture or misreading Scripture can make the legalism problem worse. This happens in at least four ways:

  1. Elevating “non-essential” doctrines or opinions to the level of undeniable truth and judging other Christians who disagree.

Theologians often categorize Christian beliefs into three levels:

  • Level 1 – Things over which there can be no compromise, such as the Trinity, Jesus’ deity, his virgin birth, the fact that his death and physical resurrection are the only provision for forgiveness of sin, and the recognition that Christians should be baptized and participate in communion.

  • Level 2 – Doctrinal differences of opinion, such as the appropriate age for baptism (infancy or adulthood), the mechanics of baptism (sprinkling or full immersion), the frequency of communion (weekly, quarterly or “whenever”), or the “theology” of communion (whether Jesus is physically present in the bread and wine, whether he is spiritually present, or whether they are just symbolic elements). These are issues around which denominations appropriately form.

  • Level 3 – Opinions, such as whether it’s OK for a Christian to buy a Lamborghini, what type of music is best for worship, or whether a church should go into debt over a building program. Although Scripture contains helpful principles to think these things through, there are no verses giving specific answers.

It’s perfectly fine to develop strong theological positions. However, they become problematic when you insist that every Christian agree with you on every point. When people “sanctify” their Level 3 views on clothing, hair styles, music preferences, etc., legalism thrives. In their terrific book How to Read the Bible for All It’s Worth, Gordon Fee and Doug Stewart observe:  “ . . . there is no such thing as a divinely ordained culture” (page 85).

2. Getting so caught up in defining every last possible sin that your distinctions become laughable:

  • Some Christian groups prohibit going to the movies “because you are supporting the evil Hollywood movie industry.” However, they allow watching the same movies once they hit TV. Really?

  • Some who forbid all alcohol say you shouldn’t even drink a Coke at a social event because “how does an observer know you don’t have rum in your Coke?” Water is the drink of choice. To that I would ask, “How does an observer know that it’s really water and not vodka?”

  • Writer Phillip Yancey recalls during his school years walking the halls of his Bible college – which forbade facial hair on male students – seeing portraits of renowned professors and school leaders from bygone eras sporting full beards.

3. Applying some New Testament commands literally while ignoring others and judging Christians who don’t obey the ones you latch onto. For example, based on Paul’s teaching in 1 Corinthians 14:34 (“Women should remain silent in the churches”) in some Christian circles, women are not allowed to hold pastoral roles that involve public speaking. However, since Paul also penned 1 Timothy 2:9, to be consistent, these same people should forbid women from wearing expensive clothing, gold or pearl adornments, or elaborate hairstyles. I have never seen “jewelry police” at the sanctuary door. Furthermore, Paul says in 1 Corinthians 11:13 that it’s improper for a woman to pray with her head uncovered. Very few Protestant churches require this.

Ironically, in the late 1960s, when “hippie culture” was beginning to flourish, many of the same Christians who ignored 1 Corinthians 11:13 about women covering their heads while praying invoked the very next verse (“If a man has long hair, it is a disgrace to him”) as “proof” that God condemns long hair on men.

Other practices which Paul presents as commands, but which are often ignored include:

  • Drinking a little wine for the stomach – Some ban all alcohol.

  • Greeting each other with a holy kiss – Pretty much unheard-of in Western churches.

  • Not prohibiting speaking in tongues – Some denominations forbid this practice. 

4. Basing some prohibitions on a misreading or misapplication of Scripture. I ran into this as a newbie when I heard an older Christian admonish a mutual friend to put down his beer. “You’re making me stumble,” he said, invoking Paul’s words in 1 Corinthians 14. If you flip to that passage, you will see Paul is discussing a particular practice – eating food that had been previously sacrificed to a pagan idol – and concludes that, although there is nothing inherently wrong with that action, a newer and “weaker” Christian could become confused by seeing such behavior and stumble in his faith. Ironically, rather than identifying as the “weaker” Christian, the person urging our friend to not drink “because it will make me stumble” is implicitly claiming the high spiritual ground.

These four factors play into the discussion of legalism in my last post and make the problem worse.

I am not in any way implying that the Bible is not helpful for teaching us how to behave, but we must carefully understand the context of these instructions so we don’t come up with questionable or inconsistent applications. And I am certainly not saying that, when it comes to our actions as Christians, “anything goes.” We are to pursue holy lives that honor God, but we should not do so in ways that elevates certain applications of biblical principles to absolute truths when there may be other equally valid ways to follow those principles.  

What do you think?

2 Awesome Prayer Practices

 
 

Although we can never fully understand all the facets of prayer, we can and should continue to make prayer a vital part of our lives. This week, I’d like to offer two creative ideas I hope will enrich your prayer life.

 

Pray Alphabetically

Although I used to sleep very soundly for most of my life, in recent years I’ve developed the unfortunate habit of waking up about 3:00 – 4:00 a.m. and not being able to get back to sleep. Once my brain “kicks in,” I know it’s all over. Mind you, I seldom worry. Instead, I think – sometimes excitedly – about what the new day holds. Regardless of my mental state, the result is the same:  I’m awake.

 

Several years ago, I read about a lady who addressed her middle-of-the-night sleeplessness by praying for people based on their names, i.e., starting with someone whose first or last name begins with the letter “A,” them moving on to a “B” person, then a “C” person, and so on. I adopted this habit bout a year ago.

 

Beyond praying for current friends, I’m amazed how God brings people to mind who I may not have thought of for years. Because I’m trying to keep my brain in neutral as long as possible so I can get back to sleep, I don’t linger very long on any name. Somehow this practice is so soothing, that I sometimes only make it halfway through the alphabet before returning to dreamland.

 

Unfortunately for “J” people, I know dozens of Jasons, Jacobs, Jims, Justins. Joes, Jeremys, etc. so they don’t get much “airtime.” At the other extreme, I know only one person with an “X” name:  Ramona Xiques, a girl from high school I took on one date. So, she shows up almost every time, assuming I stay awake long enough.

 

Break Your Prayer Requests Down

We all have a handful of very close people we regularly pray for, often every day. Everyone has layered, complex needs. When praying for these very special people, I often find myself either praying very general, high-level prayers or racing through a whole list of requests without much real engagement. If you do the same, try this instead.

 

Set up a multi-day “rotation” where you pray specifically for a different aspect of their lives each day. For example:

·       Day 1 – Pray for their spiritual life and walk with Jesus

·       Day 2 – Pray for their relationships

·       Day 3 – Pray for any of their current challenges, opportunities or struggles you know of

·       Day 4 – Pray for other life circumstance needs:  work, health, finances, etc.

 

Of course, on any day you can pray beyond the particular category, and these are just suggested groupings. You might want to include fewer or more days or develop different categories. Be creative in how you structure your prayers for these dear friends and family members.

 

 

These practices are certainly not “magic,” but they might expand your desire to pray for others. Let me know what you think.

Special Edition: Your Responses on the Dynamics of Prayer

My last blog post invited you to comment on various aspects of prayer, specifically:

·       The relationship between praying without ceasing and falling into empty repetition

·       The “quantity” of prayer

·       The specificity of prayer

·       The intensity with which we pray

 

That post generated lots of response with many wonderful insights. Submissions came in as comments on my web page and through various social media platforms. Thanks to all who contributed your ideas!

 

Instead if creating a new blog post with my own thoughts this week, I would rather spotlight your inspiring insights. You will be blessed if you take the time to read through them.

 

Two themes that several mentioned were:

  • Rather than being just “a thing,” we should view prayer as part of our relationship with God, something we live out.

  • We shouldn’t forget that the Holy Spirit intercedes for us, advocating and “correcting” our prayers as necessary.

Hard to argue with either of these ideas!

 

Scroll down to my last my post, dated August 6 and click on the  “comments” button at the bottom of my August 6 post.  

 

And I have reproduced immediately below some excerpts from social media submissions. Keep reading.

 

 

Does God hear the long agonizing prayer of lament and distress more than the simple daily prayers uttered in my life? Do numbers and words really make a difference? I don’t know how it all works but I think persevering in prayer matters. Often I just wonder does it really matter….yet I find myself praying sometimes without even thinking….it’s like breathing. We can’t live without it.

Jennifer Williams

 

These years with (my daughter) Heidi’s cancer, bone marrow transplant and soon-to-be kidney transplant have had me in “ceaseless prayer” for her. Then there are all the folks praying that I update. I honestly see prayer as more and more of a mystery…Somehow God wants us to make our requests known to Him. Yet He will work according to His plan. We can pray as a single individual and as a community, baring our hearts and souls which I believe God will hear and respond to rightly.

Twinky Satterthwaite

 

What about enjoying getting to know The Father better by just conversing with Him! Not asking Him for things all the time, but just talking and listening to Him. Listening to the promptings of His Spirit.

Sonny Lallerstedt

 

There are 4 things that seem to characterize my Intense Prayers.

1.  Shorter the better

2.  Said out loud 

3.  Conversational

4.  Alone

The HS fills in the blanks. . . . Said differently, we can’t mess up a prayer, even if it’s short in Specificity or Quantity.

Dennis Dixon

 

Ps. 37:4  . . . calls us to "delight" in the Lord. I know this verse is often misused, but when looked at in context, it shows that God desires our delighting in Him, not as a "get what we want" from a worldly sense, but from an eternal sense. The context shows that in spite of life's challenges, we are to want Him, and look forward to being with Him for eternity.

. . . .

Certainly empty repetition is not good, and I am often guilty of that.  I try to be specific, but don't overdo it. I am aware that God certainly knows the need for which I'm praying, so it's not like I'm trying to fill Him in on the details. But I think specificity is more for us than for Him. It causes us to think about the need, and it also allows us to see how God responds to the need.  But we can overdo it.  I think about how we pray in ways that might not be in God's perfect will. I would have been one to pray that Joseph be released from prison.  But that would have not been God's plan. Maybe better to pray that Joseph would experience God's blessing and that he persevere in faith.

. . .

I do like to think that if I get hung up about quantity, intensity, specificity, and language, I lose the most important aspects... relationship, trust, belief, dependence. It's about having a conversation with God who already knows what I and others need, but wants me to regard Him with the awe and intimacy that's involved in the most valuable relationship we have.

Steve Simpson

 

My prayers always have the same pattern and sometimes with different words or names and situations. I think if we get too caught up in trying to make our prayers unique, we might miss our mark on the “why” we’re talking to God in the first place.

Chris Ebert

 

One of my favorite lessons on prayer is Nehemiah 1 & 2 with emphasis on 2:1-6. Nehemiah prays with fervor and specificity when he learns of the condition of Jerusalem. The narrative intimates that others were also praying. And he demonstrates constancy when the king, perhaps unexpectedly, asks him to make a request. We may be sure that he did not spend ten minutes in prayer before responding. “He prayed to the Lord and answered the king” in one motion.

Jason Renier

Can You See This? Maybe Not If You're in the Wrong Spot

NOTE:  This post includes a total of eight photos. Please be sure to scroll down through the end or you’ll miss the surprise.

 

Joshua trees are rather funky trees in the Yucca genus that grow in the Southwestern US. Like saguaro cactus (the ones you always see in the old Western movies) and puffy cumulus clouds, Joshua trees often come in imaginative shapes that invite people to see interesting images.

 

These first two pictures show typical Joshua trees. The third one sure looks like a character from a Dr. Suess book to me.

On our way from our vacation place in Wrightwood, CA to Victorville, we always drive by a particular dead Joshua tree that reminded me of something (or someone) the first time I saw it. Here are three shots of this tree from three different angles. What do you see?

You didn’t see much? I’m not surprised. That’s because you are not seeing it from the angle from which I originally saw it.

Scroll down. Now what does it look like?

Obviously, I’m not the only one who sees this as Rudolph the Red-Nosed Reindeer. Scroll down to the next pic. Someone took it on himself or herself to decorate “Rudolph” last Christmas.

Then keep scrolling down after the picture.

Joshua Rudolph Decorated.PNG

The point is that if you are viewing something from the “wrong” angle, you can miss seeing something significant.

This phenomenon applies to more than Joshua trees and clouds. I also affects someone’s ideas about Jesus. In my book That’s a Great Question: What to Say When Your Faith Is Challenged, I identify five mental filters used by people who don’t really believe to Bible to make it say what they want it to say. Throughout history, many have used their filters to “reinterpret” Jesus to suit their preferences. Over the years, various writers and theologians have concluded that Jesus was one or more of the following:

·       Only a prophet

·       A political activist

·       A brilliant teacher but not divine

·       An enlightened seeker of truth

·       The original flower child

·       A mystic

·       The eternal essence of universal goodness sublimely manifested in a human personage (whatever that means)

·       The prototype of the new spiritual humanity to come

·       A magician

·       A hypnotist

·       Gay

·       An extraterrestrial

 

But if you take Jesus at face value – that is, in an unfiltered way – as he is described in the New Testament, you will see him as he really is:  the Son of God, the third person of the Trinity, God in human form, the savior of the world, the only way to truly know God.

 

Unfortunately, just like some people fail to see Rudolph because they are viewing him from the wrong perspective, many miss the real Jesus because they filter him through their unfortunate presuppositions.

 

If you haven’t done so in a while. I encourage you to pick up a copy of the New Testament and read what Jesus says about himself in the gospels, asking him to reveal himself to you in a fresh way. It can be life-changing.